A Hidden Smile!

Cheer up sunshine, put a smile on that dial, why are you so grumpy? Ever had someone say these things to you? I have, almost everyday!!

Since I can remember I have been teased about not smiling or have been told to cheer up, but guess what I am smiling, I am happy and cheery. I can't help looking the way I do, the muscles in my face tend not to move like yours, that's all. I smile all the time and for those who know me, they see my smile but to others it's just hidden! FSH MD makes our muscles become weak, they are there but they are so weak that they tend not to work. It's a bit like having botox in your face!!!

I'll never forget when I was a child being at my Grandma and Grandpa's house and being asked by my Aunts and Uncles to smile, I smiled but when I did, they all laughed at me and told to smile properly. They then asked me to pucker my lips like I was giving someone a kiss and I did, and again they laughed. I was asked to try again and again and I was trying my hardest and could not understand why they were laughing at me. It felt like I was smiling and it felt like I was puckering my lips but why were they laughing? What was I doing wrong?
At that time my family didn't know, nor did I know that I had FSH MD and I think back, would they have teased me if they knew? Would they have laughed? Still to this day random people will tell me to smile, to cheer up or ask why I'm so sad! Do I really look that terrible and upset? I probably do for a split second because it's like a flash back to sitting around that kitchen table at my Grandma and Grandpa's having everyone laugh at me.

I have learnt the ways my face works and the angles that make my smile show the best as I have grown older. However I think it still comes back to that old saying, Don't judge a book by its cover!! I may look grumpy and sad to you but trust me, I'm not (unless of course, you have caught me during that one week of allowance that all females have for grumpiness) and for all the struggles that I face everyday, I have to admit that I am a pretty happy person and I feel myself smiling all the time and that is all that really matters, I feel my smile my loved ones see me smile. It's a hidden smile but it's one worth discovering!

Oh remember how I said it's like having botox in your face, I have what I like to call natural botox and when you look 50 I will still look 30! Is a hidden smile all worth it? I think so!

Why I Have Started This Blog

Hi everyone,

I am new to blogging but I thought that I have something worth sharing. So here is a little bit about myself and what I hope this blog will achieve.

My name is Lynda, I am 27years old, a very proud mother of my 6 year old son and I pretty much love my life. But there is another aspect of my life that affects me everyday, it's the fact that I have a disability. I have Facioscapulohumeral Muscular Dystrophy or FSH MD for short! I was diagnosed with FSH MD when I was 16 and from that date I have had to struggle everyday with 1, the fact that I have FHS MD and 2,the fact that my body does not do what I want it to do and is slowly getting worse.

With this blog I want to share my experiences, from the emotional and physical challenges I face, to the times when I am ecstatic with joy for that fact that I have achieved something I thought I could not and to the funny and extreme situations I sometimes find myself in. I will also more than likely let my opinions let fly from time to time, about things that I think just suck. Disability rights, do they really exist?!

Please smile with me and cry with me. Enjoy my ups and downs. I hope that you enjoy some of my stories and please feel free to share your thoughts and opinions.

And remember having Muscular Dystrophy is not being Muscular Dystrophy.