Hello again everyone,
Sorry it has been so long since my last post but I have been extremley busy with all of curve balls that life throws at you. I'll give you all a quick updat before I get back into my regular blogs again.
So some exciting news, (No unfortunatley it's an update on my love life but I think this is way better news) I am extremley proud to annouce that I now am a working mother!!! Yes thats right I, yes me, I have a job!!!!! AHHHH can you tell I'm just a bit excited. I am working at Barossa Enterprises (Joblink area). It is 5 minutes down the road from my place and I am currently doing 8 hours a week over two days, So I am still studying at Tafe and still get to be a full time mum. Which is just amazing I counldn't ask for a better situation.
The Joblink section of Barossa Enterprises works to find people with disabilities or whom are disadvataged in life some how work, or study to get them ahead in life. So as hard as it is to find people like this work (I know from first hand experience) it has to be the most rewarding feeling when you get a result and find someone work. I havent yet had the chance to experience this but I am well on my way. I started working there as basically a PA for four joblink consultants but I have now also been given a caseload of my own, which means that I now have clients that I am personally involved with in finding them work. I am so proud and excited to start this part of my job. I get to meet all of my clients over the next few weeks and hopefull over the next few months I will be given the chance to up my hours too.
So, so far I am loving this job and so over excited about it but will keep you all posted on my progress and all fo you out there if you have any places open up at your work place remember to give us a call at Barossa Enterprises. Have a look at their website and see what else they do, I am still learning about everything they do there, it's very interesting.
That is the most exciting news I have for you at the moment but I will share some more things with you soon,
Take care everyone and lets hope life is throwing you some amazing curve balls too!! xoxo
Monday, 14 November 2011
Sunday, 3 July 2011
Day Dreaming!!
Most nights I dream, most people do. I love to dream and as good as my dreams, are they can also be a bit frustrating. As you all know, in your dreams you can do anything! I can too, I can run, I can jump and I can dance (oh how I love to dance). One of my favorite dreams is playing Chasey with my little boy and I just love the look on his face when I catch him! Then I wake up and the daily reality of my life sets in.
Sitting having a coffee the other day, I found myself day dreaming, dreaming of what it would be like to be able to walk like that girl over there that just walked past. Or how great the feeling would be if I could chase after my child like that Mum running around over there, yes her child was being naughty but still she could chase after him, where as me I just yell, "Come Back Here! Now"! I find myself doing this a lot of late. Watching other people, how easily they move around and how easy it is for them to just walk, to step up onto the side walk without even looking. I watch how easily and gracefully their bodies move. I also find myself thinking about how much they take it for granted. If only they knew how lucky they were.
I think I do this in part, out of jealousy because I can't just step up onto the sidewalk, or fly up the stairs. I have to look at the ground everywhere I go. I do this because I have created a habit for myself out of fear that I might fall or might not be able to get up that step. I have to watch out for sticks and stones that may cause me to lose my balance. I also can very quickly in my mind judge the shortest distance and easiest pathway for to get to form point A to point B. Pretty clever when you really think about, isn't it?
Another reason I watch the way people get around is because I find it almost graceful. I am so clumsy and so far from graceful that when I see someone jump up the stairs, or get up out of their seat without having to lean on the table, I watch and see what most people would not look at. I see how all their muscles in their legs contract and release and just lift them up so easily and it is a truly amazing thing to watch.
People stare at me for the way I move around and now I am finding myself doing the same thing. You know, you might not like your big bum or the way that dress looks on you but just remember there are people in this world just like myself that are jealous and think that your body, just the way it is, is completely beautiful because it just works the way you want it to without having to think about it.
I find ways to make things work for me even if I have to always be thinking about how? For instance, I may not be able to run and play chasey with my little boy but we still play chasey, we crawl around like lions chasing each other, or try and catch each other by throwing a ball. It might not be the graceful way but still it works and his face is just the same as in my dreams when I catch him. Dreams really can come true.
I'll end this blog with a quote that I love,
Don't be pushed by your problems, be led by your dreams!!
Sitting having a coffee the other day, I found myself day dreaming, dreaming of what it would be like to be able to walk like that girl over there that just walked past. Or how great the feeling would be if I could chase after my child like that Mum running around over there, yes her child was being naughty but still she could chase after him, where as me I just yell, "Come Back Here! Now"! I find myself doing this a lot of late. Watching other people, how easily they move around and how easy it is for them to just walk, to step up onto the side walk without even looking. I watch how easily and gracefully their bodies move. I also find myself thinking about how much they take it for granted. If only they knew how lucky they were.
I think I do this in part, out of jealousy because I can't just step up onto the sidewalk, or fly up the stairs. I have to look at the ground everywhere I go. I do this because I have created a habit for myself out of fear that I might fall or might not be able to get up that step. I have to watch out for sticks and stones that may cause me to lose my balance. I also can very quickly in my mind judge the shortest distance and easiest pathway for to get to form point A to point B. Pretty clever when you really think about, isn't it?
Another reason I watch the way people get around is because I find it almost graceful. I am so clumsy and so far from graceful that when I see someone jump up the stairs, or get up out of their seat without having to lean on the table, I watch and see what most people would not look at. I see how all their muscles in their legs contract and release and just lift them up so easily and it is a truly amazing thing to watch.
People stare at me for the way I move around and now I am finding myself doing the same thing. You know, you might not like your big bum or the way that dress looks on you but just remember there are people in this world just like myself that are jealous and think that your body, just the way it is, is completely beautiful because it just works the way you want it to without having to think about it.
I find ways to make things work for me even if I have to always be thinking about how? For instance, I may not be able to run and play chasey with my little boy but we still play chasey, we crawl around like lions chasing each other, or try and catch each other by throwing a ball. It might not be the graceful way but still it works and his face is just the same as in my dreams when I catch him. Dreams really can come true.
I'll end this blog with a quote that I love,
Don't be pushed by your problems, be led by your dreams!!
Tuesday, 14 June 2011
One Single Duck!
So I am still single and have been for a good while now. Why? I am not too sure, just haven't found the right guy yet i guess. My dad and a lot of my friends tell me I need to go out more and put myself out there. They are probably right but I think I am living in dream land sometimes. I still like to think that the right man will fall onto my lap but the chances are I will probably be the one to do all the falling, literally!
I know I have not been actively trying to find Mr Right but does Mr Right really exist? I believe it's probably, no actually I believe it's definitely a lot harder for someone with a disability to find love. I would like to think that, that's not true but in most cases I believe that it is.
Watch this video below, it is funny but it is so true because most guys want to find Mrs Perfect!
I saw this clip on the TV about a year or two ago and it was like watching myself in a mirror, kinda!! I laugh at this video, I really do because it is funny and because that guy will never live this down but it also hits home with me. It makes me wonder, is this why I am still single??
I know my walk is not that bad but still, does this happen to me when I am out and about?? I mean to look at me sitting down I am fairly normal and pretty good looking (I like to think so anyway) but when I stand up to walk I am lets say....unusual! I think it safe to say that when I walk, I walk a bit like a duck! I have even been told that I do, by more than one moron of a person! Am I ashamed about the way I walk? NO! How can I be? I can walk and that should be all that matters.
However the question lingers, do I scare men off in this way? By the way that I walk? Because I have a disability? I like to hope not but maybe this video is proof that I do. Perhaps this is exactly what happens to me when I am out and about. Would I have more of a chance at finding love if I was sitting in a wheel chair? Some of my close male friends have told me that my disability doesn't make any difference and what scares most guys off more is that I have a child. Do I believe this, kinda but kinda not!
I know I will find the right person for me one day (sooner rather then later though, please). I will make an effort to put myself out there more. My little man is even helping me. He is on Husband watch at the moment! He has been checking out the men down the street, "Mum is that him there? Is that your Husband? Hmmm, No I would prefer someone without grey hair but keep looking"!
I tell you what though, when Mr Right does come along he will be one very special person especially to take on a sexy duck waddling chick!!!!! HA HA
I'll shall keep you all posted for when Mr Right knocks on my door but until then I shall enjoy being single!!!!
Wednesday, 8 June 2011
What gets you up in the morning??
I could easily not get up in the morning and hide away from the world! I could very easily give up and become extremely depressed if I wanted to. Let everything get to me! I have some way better reasons then others out there I think. But you know what, I choose not to. I choose not to let things get on top of me. Yes I have my days but so does everyone, rarely though will you hear me complain about the pain I might be in, or the frustration that I go through. Why you might ask? Because I have way too much to look forward to and I have amazing people in my life that help me everyday. It could be the smallest thing they do, or something they say to me but every little bit helps.
My lil man is just the most amazing thing that ever happened to me and I have to be one of the luckiest Mums in the world. He tells me almost everyday that I am amazing and special! And every night I let him know that he is my hero! How can one little person bring you so much happiness? I am so very lucky to have him in my life.
He cares for me and loves me so much that he worries about me. Like this morning, he woke up crying his little eyes out. When I asked what was wrong he said "Mum I had a bad dream. What was it about? It was about you Mum, We were trying to get the pot of gold at the end of the rainbow and you fell over. You fell over and got hurt but I picked you up and carried you away. So you saved me then? Yes Mum I did but I was so worried about you, I am always worried about you Mum because I love you!!!" (I believe the reason behind this dream was due to me falling yesterday, I fell and hurt my wrist but not badly). But honestly how can you become depressed or sad when you have someone who care for you and loves you so much. I don't think you can!
My lil man is not the only person that helps me get up in the morning and keeps me going. My Parents are amazing too. We do have our moments like all children do with their parents but I am so extremely grateful to have the parents that I do. They help me out so much with things, not only around the house but life in general. I can talk to them about almost anything and can ask them for help when I need it, yes sometimes they do not understand my frustrations and in turn get just as frustrated with me. I know they can get very frustrated when they can see that I need help with something but I don't ask for the help (I can be pretty stubborn with things like that because it's hard to admit that you need help but I am learning). When I do ask though, they will do all that they can to help me. But it's not just the help and advise they give me but it's the small things too. For instance we were at my cousins wedding recently when my Mum told me she wanted to request a song for me "girl your amazing" by Bruno Mars. At the time I didn't really get why but I now listen to that song and feel pretty special and pretty good about myself, but I just need to learn not to cry when I am listening to it!! Why do I cry? Because if you listen to the words and know that someone thinks about you that way, yes some of the words are for a boy to a girl but you can't help but feel terrific and amazing!
My lil man is just the most amazing thing that ever happened to me and I have to be one of the luckiest Mums in the world. He tells me almost everyday that I am amazing and special! And every night I let him know that he is my hero! How can one little person bring you so much happiness? I am so very lucky to have him in my life.
He cares for me and loves me so much that he worries about me. Like this morning, he woke up crying his little eyes out. When I asked what was wrong he said "Mum I had a bad dream. What was it about? It was about you Mum, We were trying to get the pot of gold at the end of the rainbow and you fell over. You fell over and got hurt but I picked you up and carried you away. So you saved me then? Yes Mum I did but I was so worried about you, I am always worried about you Mum because I love you!!!" (I believe the reason behind this dream was due to me falling yesterday, I fell and hurt my wrist but not badly). But honestly how can you become depressed or sad when you have someone who care for you and loves you so much. I don't think you can!
My lil man is not the only person that helps me get up in the morning and keeps me going. My Parents are amazing too. We do have our moments like all children do with their parents but I am so extremely grateful to have the parents that I do. They help me out so much with things, not only around the house but life in general. I can talk to them about almost anything and can ask them for help when I need it, yes sometimes they do not understand my frustrations and in turn get just as frustrated with me. I know they can get very frustrated when they can see that I need help with something but I don't ask for the help (I can be pretty stubborn with things like that because it's hard to admit that you need help but I am learning). When I do ask though, they will do all that they can to help me. But it's not just the help and advise they give me but it's the small things too. For instance we were at my cousins wedding recently when my Mum told me she wanted to request a song for me "girl your amazing" by Bruno Mars. At the time I didn't really get why but I now listen to that song and feel pretty special and pretty good about myself, but I just need to learn not to cry when I am listening to it!! Why do I cry? Because if you listen to the words and know that someone thinks about you that way, yes some of the words are for a boy to a girl but you can't help but feel terrific and amazing!
So why do I get up every morning? Why don't I give up? Because who wouldn't when they have the most amazing family and friends!! When even on your down days they are there for you no matter what to give you encouragement and help with all that they can. Me, I love getting up in the morning!!
Love you all. xoxoxoxo
Thursday, 19 May 2011
A Hidden Smile!
Cheer up sunshine, put a smile on that dial, why are you so grumpy? Ever had someone say these things to you? I have, almost everyday!!
Since I can remember I have been teased about not smiling or have been told to cheer up, but guess what I am smiling, I am happy and cheery. I can't help looking the way I do, the muscles in my face tend not to move like yours, that's all. I smile all the time and for those who know me, they see my smile but to others it's just hidden! FSH MD makes our muscles become weak, they are there but they are so weak that they tend not to work. It's a bit like having botox in your face!!!
I'll never forget when I was a child being at my Grandma and Grandpa's house and being asked by my Aunts and Uncles to smile, I smiled but when I did, they all laughed at me and told to smile properly. They then asked me to pucker my lips like I was giving someone a kiss and I did, and again they laughed. I was asked to try again and again and I was trying my hardest and could not understand why they were laughing at me. It felt like I was smiling and it felt like I was puckering my lips but why were they laughing? What was I doing wrong?
At that time my family didn't know, nor did I know that I had FSH MD and I think back, would they have teased me if they knew? Would they have laughed? Still to this day random people will tell me to smile, to cheer up or ask why I'm so sad! Do I really look that terrible and upset? I probably do for a split second because it's like a flash back to sitting around that kitchen table at my Grandma and Grandpa's having everyone laugh at me.
I have learnt the ways my face works and the angles that make my smile show the best as I have grown older. However I think it still comes back to that old saying, Don't judge a book by its cover!! I may look grumpy and sad to you but trust me, I'm not (unless of course, you have caught me during that one week of allowance that all females have for grumpiness) and for all the struggles that I face everyday, I have to admit that I am a pretty happy person and I feel myself smiling all the time and that is all that really matters, I feel my smile my loved ones see me smile. It's a hidden smile but it's one worth discovering!
Oh remember how I said it's like having botox in your face, I have what I like to call natural botox and when you look 50 I will still look 30! Is a hidden smile all worth it? I think so!
Since I can remember I have been teased about not smiling or have been told to cheer up, but guess what I am smiling, I am happy and cheery. I can't help looking the way I do, the muscles in my face tend not to move like yours, that's all. I smile all the time and for those who know me, they see my smile but to others it's just hidden! FSH MD makes our muscles become weak, they are there but they are so weak that they tend not to work. It's a bit like having botox in your face!!!
I'll never forget when I was a child being at my Grandma and Grandpa's house and being asked by my Aunts and Uncles to smile, I smiled but when I did, they all laughed at me and told to smile properly. They then asked me to pucker my lips like I was giving someone a kiss and I did, and again they laughed. I was asked to try again and again and I was trying my hardest and could not understand why they were laughing at me. It felt like I was smiling and it felt like I was puckering my lips but why were they laughing? What was I doing wrong?
At that time my family didn't know, nor did I know that I had FSH MD and I think back, would they have teased me if they knew? Would they have laughed? Still to this day random people will tell me to smile, to cheer up or ask why I'm so sad! Do I really look that terrible and upset? I probably do for a split second because it's like a flash back to sitting around that kitchen table at my Grandma and Grandpa's having everyone laugh at me.
I have learnt the ways my face works and the angles that make my smile show the best as I have grown older. However I think it still comes back to that old saying, Don't judge a book by its cover!! I may look grumpy and sad to you but trust me, I'm not (unless of course, you have caught me during that one week of allowance that all females have for grumpiness) and for all the struggles that I face everyday, I have to admit that I am a pretty happy person and I feel myself smiling all the time and that is all that really matters, I feel my smile my loved ones see me smile. It's a hidden smile but it's one worth discovering!
Oh remember how I said it's like having botox in your face, I have what I like to call natural botox and when you look 50 I will still look 30! Is a hidden smile all worth it? I think so!
Tuesday, 17 May 2011
Why I Have Started This Blog
Hi everyone,
I am new to blogging but I thought that I have something worth sharing. So here is a little bit about myself and what I hope this blog will achieve.
My name is Lynda, I am 27years old, a very proud mother of my 6 year old son and I pretty much love my life. But there is another aspect of my life that affects me everyday, it's the fact that I have a disability. I have Facioscapulohumeral Muscular Dystrophy or FSH MD for short! I was diagnosed with FSH MD when I was 16 and from that date I have had to struggle everyday with 1, the fact that I have FHS MD and 2,the fact that my body does not do what I want it to do and is slowly getting worse.
With this blog I want to share my experiences, from the emotional and physical challenges I face, to the times when I am ecstatic with joy for that fact that I have achieved something I thought I could not and to the funny and extreme situations I sometimes find myself in. I will also more than likely let my opinions let fly from time to time, about things that I think just suck. Disability rights, do they really exist?!
Please smile with me and cry with me. Enjoy my ups and downs. I hope that you enjoy some of my stories and please feel free to share your thoughts and opinions.
And remember having Muscular Dystrophy is not being Muscular Dystrophy.
I am new to blogging but I thought that I have something worth sharing. So here is a little bit about myself and what I hope this blog will achieve.
My name is Lynda, I am 27years old, a very proud mother of my 6 year old son and I pretty much love my life. But there is another aspect of my life that affects me everyday, it's the fact that I have a disability. I have Facioscapulohumeral Muscular Dystrophy or FSH MD for short! I was diagnosed with FSH MD when I was 16 and from that date I have had to struggle everyday with 1, the fact that I have FHS MD and 2,the fact that my body does not do what I want it to do and is slowly getting worse.
With this blog I want to share my experiences, from the emotional and physical challenges I face, to the times when I am ecstatic with joy for that fact that I have achieved something I thought I could not and to the funny and extreme situations I sometimes find myself in. I will also more than likely let my opinions let fly from time to time, about things that I think just suck. Disability rights, do they really exist?!
Please smile with me and cry with me. Enjoy my ups and downs. I hope that you enjoy some of my stories and please feel free to share your thoughts and opinions.
And remember having Muscular Dystrophy is not being Muscular Dystrophy.
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